The skull and cervical malformations are multiple, the most frequent is the Arnold Chiari malformation and its complications (hydrocephalus, syringomielya, , and occipitals and vertebrals bone malformations). All these malformations are denominate rare diseases for its unusual apperance, that´s way many specialists do not manage to diagnose them easily. In addition these malformations have more than a hundred symptoms that do complicate more its diagnose. Many patients before managing to being diagnosed its disease are forced to peregrinate all over numerous specialists looking for advise. These malformations are diagnose only by a magnetic resonance and scanner.

Why Arnold Chiari friends? Because of two simple reasons. First of all , it is the best way to globalize the Arnold Chiari and all the malformations coming together with it Secondly, this is a chronic disease that will accompany us all life long and the best way to accept it is learning to live with it with the minimun disturbances as possible. To ge that point it is important to be informed.

What we offer?

The Association objetives:

1. To inform and to support the affected people and its family

2. To develop these diseases investigations lines

3. To improve the dissability and handicapped persons conditions

4. To inform the Society to prevent these pathologies. (Syringomielya and Arnold Chiari)

·A data base for affected people with its medical records. We try to get affected people who live nearby or have the same symptoms in contact. And we made stadistical studies.

· A forum. The affected ones can contact each other throuth brief messages.

· Chat for the affected ones

· Articles about the disease

· Industrial relations lawyer Mr. Ramon Quintela Miramontes, who offers his services to the affected ones throuth telephone or email. He is specialized in any king of dissability.

· Psychiatrist Mrs. Isabel Aschauer Lopez who offfers her aid to support the affected ones through telephone or email..

Ritht now there are several prestigious doctors working with the Association ANAC to make a protocol for Chiari malformation and syringomielya.

ANAC is also working in other projets:

· To keep in contact with Carlos III Institute and any other organization that investigates these pathologies. We look for any investigation study that might exist or any improvement in this matter all around the international community.

· To get included Arnold Chiari malformation and syringomiely in the dissability subventions scale. There is a team of partners who take care of this necessary subject

· To improve the percentage of dissability that is granted to affected people. There is a team of partners who take care of this necessary subject

· To work together with dissability and handicapped people associations

· To be member of FEDER, Spanish Federation of Rare Diseases

· To elaborate a project to ask for subventions that allow us to reach our objetives.

For all this, if you are an affected people or part of its family, you will be welcome to our Association.